Conquer Chiari has created the Conquer Chiari Patient Registry, a web accessed, secure database application that collects and stores demographic and health related data voluntarily provided by Chiari patients. The registry now has data from more than 1600 patients!
To analyze this wealth of information, Conquer Chiari is awarding Dr. Michelle Chyatte and her colleagues at NEOMED a $90,000 grant. The project includes statistical analysis for professional publications, and the creation of a new website which will allow patients to compare themselves to the data in the registry. Additionally, the NEOMED team will perform in-depth qualitative research on patients and their families to better describe how Chiari impacts people.